Missouri Advocates For Families Affected by Autism

We are a citizens action group advocating and lobbying for families that have a child with special needs. We believe that EVERY child has a right to a FREE and APPROPRIATE EDUCATION and should NEVER BE LEFT BEHIND.

Wednesday, April 3, 2013

Janet Grillo: Not Why But How

Janet Grillo: Not Why But How


This week we begin Autism Awareness Month. Two weeks ago, the CDC announced that 1 in 50 American children is diagnosed with Autism. A staggering increase from 1 in 500, when my own son was diagnosed 16 years ago, and from 1 in 110 when I made the feature film, Fly Away, two and a half years ago.
While doctors and scientists probe genetics and environment to answer WHY, those of us in the trenches ask HOW?
HOW do we, day after day, help our sons and daughters get through each day? How do we find services, schools and funds so they can learn, grow, make friends? How do we muster the support WE need, after we've been up all night with their sleep distress, interpreted their language to others, and their emotions to themselves? When we've calmed their tantrums, incurred bruises on the outside and the inside, fought with administrators for our slice of a pie already slivered into too many portions, by an epidemic of need?
And, crucially, how do we help them become adults, to live independently, with self esteem and purpose, in safety and support? They won't stay children forever, but their Autism will be with them forever. But we, their loving parents, won't be.
HOW can we guarantee that today's 1 in 50 will have a secure tomorrow? By engaging larger society to join our kids, our families, and our cause. But HOW? By sharing our stories -- the truth about on-the-ground-in-the-trenches life with our kids -- so it might grow other people's hearts to embrace them. To make a place for them in their schools, their businesses, their communities. Our fiction feature, Fly Away, shows, from the inside out, what it's like to confront your child's adult future, and realize that you can't go it alone. This April, Autism Awareness month, let's share our story bysharing this film.
Walk in our shoes, and you walk with us. And we have a long road ahead.

Fire Officials: Autistic Man Killed In East Oak Lane House Fire « CBS Philly

Fire Officials: Autistic Man Killed In East Oak Lane House Fire « CBS Philly


PHILADELPHIA (CBS) — Philadelphia fire officials are trying to find out what caused a house fire Wednesday night that left an autistic man dead and two others hospitalized.
It was around 9:30 p.m. when fire crews responded at 6600 North 12th Street. Five people were in the house at the time. Fire Commissioner Lloyd Ayers says a mother tried to get her 22-year-old son, he describes as a non-verbal, autistic, young adult, out of the home.
“He panicked. He pulled away. He’s a lot heavier than she was. She was not able to control him. He ran back up the stairs.”
Ayers says it got too dangerous for firefighters and the search had to end.
“Too much volume of fire. The chief officers had to make the decision to pull (the firefighters) out and fight the fire from the exterior. So, we never really had an opportunity to try to rescue this young man. They tried, but couldn’t do it.”
Officials say the young man was found in the front bedroom of the second floor. He was pronounced dead at 12:45 a.m.
The mother and another adult female were taken to the hospital with non-life threatening injuries. Ayers says two other children in the home were not injured and are being cared for.

Attorneys for Special Needs Children - Houston women's business | Examiner.com

Attorneys for Special Needs Children - Houston women's business | Examiner.com

Autistic Intelligence and I.Q. - Schwager Law FirmSchwager Law Firm

Autistic Intelligence and I.Q. - Schwager Law FirmSchwager Law Firm

Tuesday, April 2, 2013

Bullying: The Bullied - Lee's Summit Tribune - Lee's Summit News

Bullying: The Bullied - Lee's Summit Tribune - Lee's Summit News

“Adults can talk to the bully but that doesn’t help, they just become sneakier. The person being bullied needs to take care of themselves,” Sally Sabata, Lee’s Summit High School counselor, said. 

It is important to never bully back. This will only aggravate the bully and cause more problems. 

“Sometimes, people are just real jerks and you have to ignore them,” Sabata said. 

The sad truth is, there is not a magical formula for getting rid of a bully. 

“Bullies only stick with people they know they affect,” Sabata said. 

When the bully is ignored, they lose their power. They won’t leave the victim alone right away. The bully will persist and it will become more and more difficult to simply walk away. 

“The ones who let it beat them down don’t have someone they can turn to talk about it,” Sabata said 
A victim of bullying must understand that they don’t deserve this treatment and surround themselves with support. Let family members, friends, and trusted adults know what is going on. The support gives them somewhere to go when it gets tough. 

“Unfortunately, the work has to come from you,” Sabata said. 

A 'Brotherhood' Fights Families Wanting Special Ed - Voice of OC | Orange County's Nonprofit Investigative News Agency: Healthy Communities

A 'Brotherhood' Fights Families Wanting Special Ed - Voice of OC | Orange County's Nonprofit Investigative News Agency: Healthy Communities

'A Brotherhood'
Formed by superintendents of the county’s 28 school districts, the alliance grew from deep resistance to the federal Individuals with Disabilities Education Act, which is intended to help students with various developmental handicaps receive a free and appropriate public education.
Because the federal government never lived up to its original goal for funding special education, school districts became increasingly alarmed as they spent more general fund dollars to meet growing family requests for assistance.
When launching the alliance in 2005, one superintendent in a Los Angeles Times article called the alliance “a brotherhood." Another superintendent claimed they were “getting clobbered” by families, who felt school districts were like a “goose laying the golden egg” to be tapped at will.
Today, Ecker describes the agency’s goals as aiding districts with legal costs, professional development training for district staffs and lobbying of state and federal officials either for more money or changes in law.
In particular, the lobbying efforts are for “relieving districts of onerous requirements for serving children with special education needs,” said Ecker.
The alliance also uses top-notch professionals to train community advisory committees, which are required by state law to reduce strife between school district officials and families.
But even this aspect of the alliance's mission has generated controversy.
While these committees can and do provide some assistance, interviews show they also can struggle to meet the challenge. Their memberships can be politicized, for instance, by those appointed, who then pay lip service to resolution efforts, say families.
For example, a trustee praised the committee in the Newport-Mesa Unified School District as substantially effective, but Poita A. Cernius, a parent who has dealt with the committee for 14 years, called it "a squawk box for district administrators.”
Newport-Mesa Unified’s committee didn’t respond to interview requests.
How the Alliance Operates
The alliance meets infrequently and irregularly at the Orange County Department of Education building in Costa Mesa. For a quorum, it needs but three superintendents from the 28 districts, who are joined by school district defense attorneys and other school officials.
Ronald D. Wenkart, general counsel for the county education department, and Lysa M. Saltzman, an attorney in Wenkart's office, have aided the alliance. As staff,the alliance funds a single consultant, who officials said keeps some of the organization's records at her home.
Each Orange County school district typically is assessed 20 and 50 cents per student per year to fund the alliance's operations. The annual assessment, however, isn’t always levied. This year the alliance has approximately $425,000 on hand, according to documents.
In its effort, the alliance helps districts fight families with children with issues that include developmental disorders like autism, traumatic brain injuries and disabled foster children being aided by guardians. In any given year, the alliance might by helping defend against up to five lawsuits.
The largest single category in the alliance's annual budget is for litigation support for districts, budgeted this year for at least $75,000. The agency’s lobbyist costs $12,000. The alliance projects expenditures of $200,000 in 2012.
In every case, reports show, the alliance took a position against a family rather than supporting one.
Beyond its efforts locally, the alliance has sought to aid the filing friend-of-the-court or amicus curiae briefs with the U.S. 9th Circuit Court of Appeals in San Francisco. It specifically selects cases that might win precedent-setting rulings in favor of school districts.


OC Families Face Fierce Fight for Special Ed Services - Voice of OC | Orange County's Nonprofit Investigative News Agency: OC Central

OC Families Face Fierce Fight for Special Ed Services - Voice of OC | Orange County's Nonprofit Investigative News Agency: OC Central


The Rights and Costs of Special-Needs Children
Under the federal Individuals with Disabilities Education Act [IDEA] and state law, districts are required to provide a free appropriate public education to youths with disabilities from birth to 21 years of age. And though districts and families are often at odds over what assistance is needed, it can include specialized instruction; daily or weekly speech, occupational or psychological therapies; or special schools for those with severe emotional issues.
The cost of providing these services can easily spiral, with districts spending tens of millions of dollars a year on special education, depending on the number of eligible students. District general funds are also tapped to augment state and federal dollars, which for years have not kept pace with needs.
But even when taking these realities into account, special education experts say resistance to paying for services is so ingrained among school districts that they will spend hundreds of thousands of taxpayer dollars on attorney fees — amounts that in some cases dwarf the costs of the services sought — to deny or not reimburse families for the educational needs.
And though special education disputes are common throughout California and the nation, family attorneys and special education advocates say district legal resistance in Orange County is among the fiercest in the country.
“There is room for problem solving and compromise" when districts seek a balance, said Irvine-based Maureen Graves, a family attorney and founder of the California Association for Parent-Child Advocates.
“When school districts become obsessed with defending their original instructional plans, discrediting families and keeping parents in the dark, disputes escalate. Schools and families suffer,” she said.
Graves and other advocates say districts direct streams of funds to a small cadre of attorneys to fight families seeking special education services, which vary from tests costing a few thousand dollars to individual class aides to residential placement in highly sophisticated, out-of-state facilities.
Additionally, some local districts, including Garden Grove Unified, have refused to publicly disclose the costs, which an open-government expert says is a violation of state law.
Given that Baquerizo estimates her legal bills over the past five years alone were about $350,000, the district’s are likely far higher. The most recent battle was over about $14,000 in services annually and prior skirmishes have topped $50,000 in annual costs.