Missouri Advocates For Families Affected by Autism

We are a citizens action group advocating and lobbying for families that have a child with special needs. We believe that EVERY child has a right to a FREE and APPROPRIATE EDUCATION and should NEVER BE LEFT BEHIND.

Friday, January 24, 2014

AutisticChick: What I saw

AutisticChick: What I saw



I left the gym, I had to, because the music made me uncomfortable. I stood by the door. 

I waited. I turned toward the door to the gym, and I saw a classmate burst through the door, an aide inches behind him. The aide grabbed a strap on his vest and stopped him cold. The student struggled. Aides thronged at the little windows.

I know what they saw. 


They didn't see someone asking to be taken for a walk. They didn't see him begging to have some space. 

They saw an escape attempt. A noncompliant escape attempt. A student trying to outsmart the teachers, to get his way. 

They saw someone who didn't understand the point of P.E.

They saw a runner.


He pulled away, and the aide pushed him back  through the gym door, shouting "In we go! In we go! In we go," his hands pulling and pushing as the student dug his heels in. Everyone else "encouraged" from the sidelines. I saw too much happening.

I saw an apraxic struggle. I saw a nonverbal student being pushed through a door in a frenzy of movement, everyone shouting at the same time, bent over with hands thrusting at his back, pushing against the doorframe and struggling to stay upright. I saw too much, too much.

I saw a blur of movement and sounds coming at me from every direction, I saw the ceiling the doorframe the floor somebody's hands everyone shouting. I saw the final thrust through the door, met with bright lights and cheering, everyone applauding the nice save! 

I saw dizzy and disoriented. 

I saw what he saw.


I saw a classmate who couldn't respond to prompts because they were coming too fast, and who couldn't comply because everything was being thrown at him at once.

He slumped against the gym wall and slammed his head back. The act was met with a sharp reprimand from a bystanding aide. And I know what they saw.

They saw defiance. Headbanging behavior. A tantrum.

I saw a student trying to block out external input. I saw. Everyone else gawked and chattered as the other kids did the warm-ups. I stood by helplessly.

I saw a humiliated man sitting against a wall in a corner, helpless and outnumbered, with no way to communicate.

 I saw what he saw, the flash of students flying all around me and I saw people surrounding me, cheering, cheering for the aide as though it was some big victory to drag a student back into a classroom. I saw the world whirling around my head and it hitting the wall just to drown out the noise. 

I saw that nobody was asking themselves how he might feel. I didn't just see the defeat, though, the lack of dignity or respect; I saw humiliation. Oh, yes, I saw. Pain.

I watched in horror. I felt for him. I felt with him. An aide, concerned that I had left, asked me if I was ok. Then she smiled at me knowingly. Chuckled, "He's having a little fit."

No. That's not what I saw.

I saw an overwhelmed student trying to escape a hostile environment. An attempt to find a safe place, or a bathroom, or some water. 

I saw a hasty and disjointed "rescue" that fried his emotions and ability to think. I saw visual, auditory, vestibular and tactile input slam him like a truck. I saw vestibular upheaval, and I saw desperation and fear and frustration because nobody understood, not one of them. 

They saw a fit. 

They didn't see what I saw.

*****


I know, I mouthed across the aisle. It's ok. I know. He smiled back at me.

I know. 

The bus engine rumbled, and we began to pull out of the lot. They were still talking about him, imputing motives based on their own experience. I knew that he could hear them. That they didn't really care. That it wasn't my place to correct them. To try and educate them. Not the student's place.

 I saw the look on his face, and I knew that nobody understood. 

He sat alone, leaning against the vinyl of his seat, his expression fraught with distress, his eyebrows knit. I knew that they were fine, and they could sit there and casually theorize about it, but that he was still coming down. I saw the look in his eyes. I didn't know what to say. 

I saw his hand, resting on the seat. Hesitating, I leaned into the aisle and placed mine next to it. I didn't know how else to say I support you.

His thumb wrapped itself around two of my fingers, and for a moment it was like that. Then he lifted his hand and took mine in it.

I squeezed. I know.

We stayed that way for about a minute. The bus rumbled down the street, curving around the corners, my hand in his. 

They said I helped calm him down. Sometimes people underestimate what it means to acknowledge someone's humanity. To see it. I don't know what they thought my gesture was, but we knew what it was. A show of solidarity. A quiet one, not a trumpeting fanfare, but a whisper. I know.



This is what I saw. Very different from what the teachers saw.

I don’t know exactly what he saw. I believe that it was terrifying.





But I hope . . . I hope . . . that after the terror . . . I hope that he saw a friend.

Thursday, January 23, 2014

U.S. Departments of Education and Justice Release School Discipline Guidance Package to Enhance School Climate and Improve School Discipline Policies/Practices | U.S. Department of Education

U.S. Departments of Education and Justice Release School Discipline Guidance Package to Enhance School Climate and Improve School Discipline Policies/Practices | U.S. Department of Education



The U.S. Department of Education (ED), in collaboration with the U.S. Department of Justice (DOJ), today released a school discipline guidance package that will assist states, districts and schools in developing practices and strategies to enhance school climate, and ensure those policies and practices comply with federal law. Even though incidents of school violence have decreased overall, too many schools are still struggling to create positive, safe environments. Schools can improve safety by making sure that climates are welcoming and that responses to misbehavior are fair, non-discriminatory and effective. Each year, significant numbers of students miss class due to suspensions and expulsions—even for minor infractions of school rules—and students of color and with disabilities are disproportionately impacted. The guidance package provides resources for creating safe and positive school climates, which are essential for boosting student academic success and closing achievement gaps.
"Effective teaching and learning cannot take place unless students feel safe at school,"U.S. Secretary of Education Arne Duncan said. "Positive discipline policies can help create safer learning environments without relying heavily on suspensions and expulsions. Schools also must understand their civil rights obligations and avoid unfair disciplinary practices. We need to keep students in class where they can learn. These resources are a step in the right direction.
The resource package consists of four components:
  • The Dear Colleague guidance letter on civil rights and discipline, prepared in conjunction with DOJ, describes how schools can meet their legal obligations under federal law to administer student discipline without discriminating against students on the basis of race, color or national origin;
  • The Guiding Principles document draws from emerging research and best practices to describe three key principles and related action steps that can help guide state and local efforts to improve school climate and school discipline;
  • The Directory of Federal School Climate and Discipline Resources indexes the extensive federal technical assistance and other resources related to school discipline and climate available to schools and districts; and
  • The Compendium of School Discipline Laws and Regulations, an online catalogue of the laws and regulations related to school discipline in each of the 50 states, the District of Columbia and Puerto Rico, compares laws across states and jurisdictions.
"A routine school disciplinary infraction should land a student in the principal’s office, not in a police precinct,"Attorney General Eric Holder said. "This guidance will promote fair and effective disciplinary practices that will make schools safe, supportive and inclusive for all students. By ensuring federal civil rights protections, offering alternatives to exclusionary discipline and providing useful information to school resource officers, we can keep America’s young people safe and on the right path."
The guidance package is a resource resulting from a collaborative project—the Supportive School Discipline Initiative (SSDI)—between ED and DOJ. The SSDI, launched in 2011, addresses the school-to-prison pipeline and the disciplinary policies and practices that can push students out of school and into the justice system. The initiative aims to support instead school discipline practices that foster safe, inclusive and positive learning environments while keeping students in school. The Department of Justice enforces Title IV of the Civil Rights Act of 1964, which prohibits discrimination on the basis of race or national origin in public schools, and Title VI of the Civil Rights Act of 1964, which prohibits discrimination on the basis of race, color or national origin by schools, law enforcement agencies, and other recipients of federal financial assistance.
The guidance package also results from President Obama's Now is the Time proposal to reduce gun violence. It called on ED to collect and disseminate best practices on school discipline policies and to help school districts develop and equitably implement their policies. To both continue ED/DOJ efforts in connection with SSDI and fulfill the administration's commitment to "Now is the Time," the guidance package was developed with additional input from civil rights advocates, major education organizations and philanthropic partners.
To view the resource documents, visit www.ed.gov/school-discipline.

▶ Warning of crisis for adults with autism - YouTube

▶ Warning of crisis for adults with autism - YouTube

Wednesday, January 22, 2014

What Are You Doing? | The Autism Site Blog

What Are You Doing? | The Autism Site Blog



Autism is a difficult condition to accept, but imagine being the peers of a child diagnosed with autism. Confused and unfamiliar with the actions of an individual with autism, some children may resort to negative assumptions of why a child with autism acts in certain ways.
Watch this informational film that helps children understand children on the autism spectrum and how they can accept and relate with them more than they think.

Read more at http://blog.theautismsite.com/what-are-you-doing/#zdaX7Td78ygqfF6z.99

Swimming With Autism | The Autism Site Blog

Swimming With Autism | The Autism Site Blog



We have begged Lee's Summit to use their $12 million aquatic center for this.  It should be in their student's IEPs.  But, they won't do it.



Ten-year-old Daniel is non-verbal and was diagnosed on the autism spectrum. But his diagnosis has not stopped he or his family from giving him the opportunities that all children should have such as the chance to swim. For the past six years Daniel has been working with a swim school to learn not only how to swim, float and have fun in the water, but at the same time learning how to communicate.



Watch as the co-owner of this swim school describes the successes Daniel has shown over the years and how it has helped him to become successful in listening and following directions. Autism won’t stop our kids from living and enjoying the activities that every child should enjoy!